One of us is stronger and taking on more responsibility in the house and one of us is becoming slightly weaker and sitting in his recliner a lot more. Can you guess which one is Tim?
Myth - Tysabri is as bad a chemo and Tim will loose his hair.
Fact - Tysabri is a type of "drug" (chemical) treatment and Tim already had the missing hair problem, Tysabri didn't do that to him (he wore baseball caps most of the time so no one would notice.)
Myth - Tysabri is like chemo for Cancer patients and will make him sick.
Fact - He only gets tired when the infusion nurse MAKES him take benadryl and ibuprofen to prevent reactions, otherwise, no sicky feeling, not a Cancer drug (as far as I know).
Myth - He has to sit for 2+ hours in a small room with one wall of recliners and one nurse and have an IV placed for the infusion and he is miserable.
Fact - Ok, so the above was mostly all fact, the myth was that he is miserable. He is in fact fine and comfortable, me on the other hand has to go down to the lobby or out to the park area and sit by myself with a bunch of crazy misfit patients from the Parkland Hospital. Can you say Orange and White striped jump suits mean prisoner? Ok, I digress. All of facebook had a conversation with me about house slippers and nursing scrubs being today's fashion for the "person of size" (pc) population.
All in all, this drug, we believe, has helped to slow down the progression of Tim's MS...until now...
BTW, I am trying to post all the old stuff to catch up to the here and now. How am I doing?
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